Skip links

[eBook] Living with Duchenne Muscular Dystrophy (DMD): Tommy’s Story

We are excited to share the first eBook in our “All the Difference” series, where extraordinary individuals share their experiences living with rare and complex conditions. The first eBook focuses on Tommy, one of our patients living with Duchenne Muscular Dystrophy (DMD).

Duchenne muscular dystrophy (DMD) is a genetic, progressive form of muscular dystrophy that occurs primarily in males. It is caused by genetic changes in the DMD gene and is inherited in an X-linked recessive pattern. X-linked means the gene for the condition is located on the X-chromosome.

This eBook highlights Tommy’s story living with DMD. You will learn what Duchenne Muscular Dystrophy is, the causes, and early detection signs. In addition, you’ll hear about Tommy’s journey with DMD and how, with the support of his care team and family, he can still lead a fulfilling life. Finally, we’ll also share how Orsini can provide support and specialty medications to DMD patients.

“My health is really important to me. If I’m healthy I can do my normal activities, but when I’m not, it’s hard to get them accomplished.” – Tommy

Click here
or the button below, to download your digital copy of the All the Difference eBook.

We hope you enjoy reading Tommy’s story. If you have any questions or want to speak with a member of our team, simply click here and we will be in touch.