Posts

• [eBook] Living with Duchenne Muscular Dystrophy (DMD): Tommy's Story
• [eBook] Living with Duchenne Muscular Dystrophy (DMD): Tommy's Story
• [eBook] Living with Spinal Muscular Atrophy: Sienna & Wesley's Stories
• [Patient Story] Living with Hereditary ATTR amyloidosis: Dennis' Story
• [Video] How a Specialty Pharmacy Can Make All the Difference for Patients
• [Video] The Value of a Specialty Pharmacy Partner for Manufacturers
• [Video] The Value of a Specialty Pharmacy Partner for Manufacturers
• 3 Opportunities for Patients with Rare & Complex Diseases in the Time of COVID-19
• 3 Proven Ways to Help Patients Manage the Costs of Specialty Medications for Rare Conditions
• 5 Services Providers Should Expect from a Specialty Pharmacy
• 5 Ways COVID-19 Impacts Immunocompromised & Rare Disease Patients
• 6 Facts About Alzheimer's Disease
• 6 Important Facts to Know About Hereditary Angioedema
• 6 Metrics to Track Specialty Pharmacy Patient Satisfaction
• 7 Common Characteristics of a Specialty Drug
• 7 Factors Payors Should Consider When Choosing a Specialty Pharmacy Partner
• 7 Facts About Rare Diseases to Raise Awareness on Rare Disease Day
• 7 Facts to Know About DMD on World Duchenne Awareness Day
• 7 Helpful Facts to Raise Awareness for Duchenne Muscular Dystrophy (DMD)
• 7 Ways to Support Caregivers During National Family Caregivers Month
• 8 Facts to Know About Mucopolysaccharidosis on MPS Awareness Day
• Abilify MyCite® (aripiprazole tablets with sensor)
• Adzynma (ADAMTS13, recombinant-krhn)
• Aldurazyme® (laronidase)
• Amondys 45™ (casimersen)
• Amvuttra® (vutrisiran)
• Arcalyst® (rilonacept)
• Austedo® (deutetrabenazine)
• Austedo® XR (deutetrabenazine)
• Berinert® [C1 esterase inhibitor (human)]
• Brineura® (cerliponase alfa)
• Cerdelga® (eliglustat)
• Cerezyme® (imiglucerase)
• Choosing a Specialty Pharmacy to Support Duchenne Muscular Dystrophy
• Choosing a Specialty Pharmacy to Support ERT Therapies
• Choosing a Specialty Pharmacy to Support Hereditary Angioedema
• Choosing a Specialty Pharmacy to Support Hereditary ATTR Amyloidosis Patients
• Choosing a Specialty Pharmacy to Support Idiopathic Pulmonary Fibrosis Patients
• Choosing a Specialty Pharmacy to Support Mucopolysaccharidosis (MPS) Patients
• Choosing a Specialty Pharmacy to Support Patients with Recurrent Pericarditis
• Choosing a Specialty Pharmacy to Support Patients with X-linked hypophosphatemia
• Choosing a Specialty Pharmacy to Support Pompe Disease Patients
• Choosing a Specialty Pharmacy to Support Spinal Muscular Atrophy
• Choosing a Specialty Pharmacy to Support Spinal Muscular Atrophy
• Choosing a Specialty Pharmacy to Support Tardive Dyskinesia Patients
• Cinryze® [C1 esterase inhibitor (human)]
• Clinical & Operational Services to Consider When Selecting a Specialty Pharmacy Partner
• Communication & Collaboration Between a Pharmaceutical Manufacturer and Specialty Pharmacy
• COVID-19 Lengthens the Journey to Health Equity for Rare Disease Patients
• Crysvita® (burosumab-twza)
• Deflazacort
• Demystifying Four Common Pain Points for Patients Living with Rare Diseases
• Dietary Guidelines: Gaucher Disease Type 1 Patients Taking Miglustat
• Dojolvi® (triheptanoin)
• Elaprase® (idursulfase)
• Elelyso® (taliglucerase alfa)
• Elevidys™ (delandistrogene moxeparvovec-rokl)
• Elfabrio® (pegunigalsidase alfa-iwxj)
• Emflaza® (deflazacort)
• Esbriet® (pirfenidone)
• Evkeeza® (evinacumab-dgnb)
• Exondys 51® (eteplirsen)
• Fabrazyme® (agalsidase beta)
• Firazyr® (icatibant)
• Five Ways to Define and Redefine Rare Diseases
• From Diagnosis to Treatment: The Difficulties Rare Disease Patients Encounter
• Gene Therapy Guides Future Treatment for Rare Diseases
• Haegarda® [C1 esterase inhibitor subcutaneous (human)]
• Hemgenix® (etranacogene dezaparvovec-drlb)
• How to Manage the Administrative Burden of Prior Authorization
• How to Manage the Administrative Burden of Prior Authorization
• Icatibant Acetate
• Importance of Hand Hygiene in Healthcare: Handwashing Awareness Week
• Importance of the ACHC Distinction in Rare Diseases and Orphan Drugs for a Specialty Pharmacy Partner
• Ingrezza® (valbenazine)
• Intravenous Immunoglobulin (IVIG)
• Kalbitor® (ecallantide)
• Kanuma® (sebelipase alfa)
• Leqvio® (inclisiran)
• Living with Duchenne Muscular Dystrophy: Tommy's Poem
• Lumizyme® (alglucosidase alfa)
• MACI® (autologous cultured chondrocytes on a porcine collagen membrane)
• Medical Benefits Billing for Specialty Therapies
• Mifepristone
• Miglustat
• Naglazyme® (galsulfase)
• Nexviazyme® (avalglucosidase alfa-ngpt)
• Now In Stock: ADZYNMA (ADAMTS13, recombinant-krhn), for patients with cTTP
• Ofev® (nintedanib)
• Onpattro® (patisiran)
• Operational Challenges Payors Face with Rare Disease Limited Distribution Drugs
• Optimizing Patient Care Services with Rare Disease Limited Distribution Drugs
• Orsini Announcement: Orsini Specialty Pharmacy Chosen to Dispense YARGESA (miglustat)
• Orsini Announcement: Orsini Specialty Pharmacy Welcomes Two Executive Leadership Hires
• Orsini Salutes Healthcare Quality Week
• Orsini selected as the exclusive specialty pharmacy for WAINUA (eplontersen) for adults with hereditary transthyretin-mediated amyloid polyneuropathy
• Orsini selected as the exclusive specialty pharmacy for WAINUA (eplontersen) for adults with hereditary transthyretin-mediated amyloid polyneuropathy
• Orsini Selected by BioMarin to Dispense ROCTAVIAN™, the First Gene Therapy for the Treatment of Severe Hemophilia A
• Orsini Selected by Sarepta Therapeutics to Dispense ELEVIDYS (delandistrogene moxeparvovec-rokl), the First Gene Therapy to Treat Duchenne Muscular Dystrophy
• Orsini Specialty Pharmacy Earns Rare Disease Pharmacy Center of Excellence Designation from URAC
• Orsini Specialty Pharmacy Names Darin DeCarlo Chief Growth Officer
• Orsini Specialty Pharmacy Now Dispensing VOWST™ (fecal microbiota spores, live – brpk)
• Orsini Specialty Pharmacy Offers Patients Access to Generic Treatment for Severe Homozygous Cystinuria
• Orsini Specialty Pharmacy Partners with Amicus Therapeutics to Dispense New Therapy for the Treatment of Late-Onset Pompe Disease
• Orsini Specialty Pharmacy Partners with Amicus Therapeutics to Dispense New Therapy for the Treatment of Late-Onset Pompe Disease
• Orsini Specialty Pharmacy Selected as a Limited Distribution Partner for AMVUTTRA™ (vutrisiran)
• Orsini Specialty Pharmacy Selected as Distribution Partner for Adzynma (ADAMTS13, recombinant-krhn), a Newly Approved Treatment for an Ultra-Rare Blood Clotting Disorder
• Orsini Specialty Pharmacy Selected as Distribution Partner for Adzynma (ADAMTS13, recombinant-krhn), a Newly Approved Treatment for an Ultra-Rare Blood Clotting Disorder
• Orsini Specialty Pharmacy Selected as part of the Limited Specialty Pharmacy Network For VYJUVEK™
• Orsini Specialty Pharmacy Selected by Alnylam® Pharmaceuticals as Limited Distribution Partner for OXLUMO™
• Orsini Specialty Pharmacy Selected by Glaukos® Corporation as a Specialty Distribution Partner for Photrexa® and Photrexa® Viscous
• Orsini Specialty Pharmacy Selected by Glaukos® Corporation as a Specialty Distribution Partner for Photrexa® and Photrexa® Viscous
• Orsini Specialty Pharmacy Selected by Marinus Pharmaceuticals as the Exclusive Specialty Pharmacy Partner for ZTALMY®
• Orsini Specialty Pharmacy Selected by Provention Bio as a Limited Distribution Partner for TZIELD
• Orsini Specialty Pharmacy Selected by PTC Therapeutics as a Limited Distribution Partner for EMFLAZA® (deflazacort)
• Orsini Specialty Pharmacy Selected By Sanofi As A Limited Distribution Partner For Nexviazyme®
• Orsini Specialty Pharmacy Selected by Sarepta Therapeutics as a Limited Distribution Partner for AMONDYS 45 (casimersen)
• Orsini Specialty Pharmacy Selected by Sarepta Therapeutics as a Limited Distribution Partner for AMONDYS 45 (casimersen)
• Orsini Specialty Pharmacy Selected to be the Exclusive Specialty Pharmacy Partner for Evkeeza™
• Orsini Specialty Pharmacy Selected to be the Exclusive Specialty Pharmacy Partner for Evkeeza™
• Orsini Specialty Pharmacy Selected to be the Exclusive Specialty Pharmacy Partner for VEOPOZ™ (pozelimab-bbfg), the First and Only Treatment for CHAPLE Disease
• Orsini Specialty Pharmacy Selected to Dispense Aduhelm™ for the Treatment of Alzheimer's Disease
• Oxlumo® (lumasiran)
• Patients Share Their Journeys Living with Rare & Complex Diseases
• Payor Considerations When Evaluating a Specialty Pharmacy Partner
• PEDMARK® (sodium thiosulfate injection)
• Pharmaceutical Manufacturer & Payor Expectations When Partnering with a Specialty Pharmacy
• Photrexa® (riboflavin 5’-phosphate ophthalmic solution)
• Pirfenidone
• Pombiliti™ (cipaglucosidase alfa-atga) + Opfolda™ (miglustat)
• Pradaxa® (dabigatran etexilate) oral pellets - pediatric
• Rare Disease Day: A Reminder of Our Immense Responsibility to Serve Patients and Families
• Rare Disease Day: In Loving Memory of Tommy
• Rare Disease Day: Raising Awareness for Patients Living with Rare Diseases
• Rare Disease Day: Raising Awareness for Patients Living with Rare Diseases
• Roctavian™ (valoctocogene roxaparvovec-rvox)
• Ruconest® [C1 esterase inhibitor (recombinant)]
• Sinuva® (mometasone furoate)
• Six Reasons the Specialty Pharmacist Role is Increasingly Important
• Six Ways Orsini Ensures No Patient is Left Behind
• Six Ways the Right Specialty Pharmacy Partner Helps Improve Medication Adherence
• Six Ways to Help Patients Manage Rare Diseases
• Soliris® (eculizumab)
• Sublocade® (buprenorphine extended-release)
• Tackling the Challenge of Health Literacy, One Word at a Time
• Takhzyro® (lanadelumab-flyo)
• The 3 Distribution Models to Choose for a Specialty Drug Launch
• The Burden of Prior Authorizations: How Specialty Pharmacies Can Help
• The Importance of Payor Credentialing When Selecting a Specialty Pharmacy Partner
• Three Reasons Why Newborn Screening Awareness Month is More Important than Ever
• Tiopronin
• Tzield® (teplizumab-mzwv)
• Ultomiris® (ravulizumab-cwvz)
• Veopoz™ (pozelimab-bbfg)
• Vigabatrin
• Viltepso® (viltolarsen)
• Vimizim® (elosulfase alfa)
• Vivitrol® (naltrexone)
• Vowst™ (fecal microbiota spores live-brpk)
• Vpriv® (velaglucerase alfa)
• Vyepti® (eptinezumab-jjmr)
• Vyndamax® (tafamidis)
• Vyndaqel® (tafamidis meglumine)
• Vyondys 53® (golodirsen)
• Wainua
• What is a Specialty Pharmacy?
• What Makes Orsini Special? Meet Our Specialty Pharmacists
• White Paper: Optimizing Patient Care in Rare Hematologic Conditions: Novel Therapies in Classical Hematology and the Role of Specialty Pharmacy in Driving Enhanced Outcomes
• Why You Need a Limited Distribution Network for Rare Disease Drugs
• Xenpozyme® (olipudase alfa-rpcp)
• Yargesa™ (miglustat)
• Zolgensma® (onasemnogene abeparvovec-xioi)
• Ztalmy® (ganaxolone)
• Zulresso® (brexanolone)

Pages

• Accreditations
• Careers
• Contact Us
• Find a Medication
• HIPPA Privacy Policy
• Homepage
• Leadership
  • Brandon Tom
  • Brett Furchner
  • Clara Coca
  • Darin DeCarlo
  • Eyad Farah
  • Kathi Henson
  • Lynda Parker
  • Lynn Black
  • Matthew Swajkowski
  • Nick Calla
  • Sean Tragesser
  • Victor Haddock
• Our Story
• Patient Enrollment Form
• Patient Stories
  • Amy's Journey with HAE Type III
  • Annabelle's Journey with Mucopolysaccharidoses
  • Austin and Max's Journeys with DMD
  • Erin's Journey with XLH
  • Joan's Journey with Tardive Dyskinesia
  • Lisa's Journey with Hereditary Angioedema
  • Nicholas' Journey with MPS Type II
  • Robert's Journey with IPF
  • Sienna and Wesley's Journeys with SMA
  • Tommy's Journey with DMD In Loving Memory
• Prescribe a Therapy
• Privacy Notice
• Resources
• Sitemap
• Solutions
• Solutions
  • Home Infusion & Nursing
  • Patient Services Hub
  • Specialty Pharmacy
  • Third-Party Logistics
• Therapeutic Areas
  • Allergy & Immunology
  • Cardiology
  • Cell & Gene Therapy
  • Endocrinology
  • Gastroenterology
  • Genetics
  • Hematology
  • Infectious Disease
  • Nephrology
  • Neurology
  • Ophthalmology
  • Orthopedics
  • Psychiatry
  • Pulmonology
• Who We Serve
  • Biopharma
  • Patients
  • Payors
  • Providers

Categories

• Blog Posts
• Drug
  • Acid Sphingomyelinase Deficiency (ASMD)
  • Alcohol Dependence
  • Atypical Hemolytic Uremic Syndrome (aHUS)
  • Bipolar Disorder
  • Cartilage Defect Repair
  • CD55-deficient protein-losing enteropathy (CHAPLE) Disease
  • Ceroid Lipofuscinosis (C2LN)
  • Congenital thrombotic thrombocytopenic purpura (c-TTP)
  • Corneal Ectasia
  • Cryopyrin-Associated Periodic Syndromes (CAPS)
  • Cushing's Syndrome
  • Cyclin-dependent kinase-like 5 (CDKL5) Deficiency Disorder
  • Deficiency of Interleukin-1 Receptor Antagonist (DIRA)
  • Duchenne Muscular Dystrophy (DMD)
  • Fabry disease
  • Gaucher Type I Disease
  • Hemophilia A
  • Hemophilia B
  • Hereditary Angioedema (HAE)
  • Hereditary ATTR amyloidosis (hATTR)
  • Hereditary ATTR amyloidosis (hATTR) - Cardiomyopathy (CM)
  • Hereditary ATTR amyloidosis (hATTR) - Polyneuropathy (PN)
  • Hereditary transthyretin-mediated amyloid polyneuropathy (ATTRv-PN)
  • Heterozygous Familial Hypercholesterolemia (HeFH)
  • Home Nursing
  • Homozygous Cystinuria
  • Homozygous Familial Hypercholesterolemia (HoFH)
  • Huntington’s Disease Chorea
  • Idiopathic Pulmonary Fibrosis (IPF)
  • Infantile Spasms
  • Long-Chain Fatty Acid Oxidation Disorders (LC-FAOD)
  • Lysosomal Acid Lipase Deficiency (LAL-D)
  • Major Depressive Disorder (MDD)
  • Migraine
  • Mucopolysaccharidosis Types I, II, VI, VII, IVA
  • Nasal Polyps
  • Opioid Dependence
  • Ototoxicity Associated With Cisplatin
  • Paroxysmal Nocturnal Hemoglobinuria (PNH)
  • Polyneuropathy (PN)
  • Pompe Disease
  • Postpartum Depression
  • Primary Hyperlipidemia
  • Primary Hyperoxaluria Type 1 (PH1)
  • Primary Immune Deficiency
  • Progressive Keratoconus
  • Recurrent C. difficile Infection (rCDI)
  • Recurrent Pericarditis (RP)
  • Refractory Complex Partial Seizures
  • Schizophrenia
  • Spinal Muscular Atrophy (SMA)
  • Systemic Sclerosis Interstitial Lung Disease (SSc-ILD)
  • Tardive Dyskinesia (TD)
  • Tumor-induced Osteomalacia (TIO)
  • Type 1 Diabetes (T1D)
  • Venous Thromboembolism (VTE)
  • Wild type transthyretin amyloid cardiomyopathy (wtATTR-CM)
  • X-linked Hypophosphatemia (XLH)
• In the News
• Videos
• White Papers