We are honored to share the third patient story in our “All the Difference” series, where extraordinary individuals share their experiences living with rare and complex conditions. This inspiring story focuses on Dennis, living with Hereditary ATTR (hATTR) amyloidosis.
A rare and debilitating genetic condition, hATTR amyloidosis affects some 50,000 people worldwide. It is characterized by the buildup of abnormal deposits of protein fibers called amyloid in the body’s organs and tissues, interfering with their normal functioning.
In Dennis’ story, you will learn more about what hATTR amyloidosis is, and the causes of the disease. In addition, you’ll read about the challenges Dennis experienced leading up to being diagnosed with hATTR amyloidosis, and how after receiving a new heart, and with the help of a life-saving drug, the encouragement of his wife and therapy dog, Dani, and the support of Orsini Specialty Pharmacy, he has a new outlook on life and a new mission moving forward. Finally, you’ll learn how Orsini can provide support and specialty medications to patients living with hATTR amyloidosis.“I dreamed of the little things, like working in the yard, enjoying the taste of food and being able to go for a walk. My dreams have come true. I feel blessed.” – Dennis.
Click here to read Dennis’ full story.
We hope you enjoy reading Dennis’ story. If you have any questions or want to speak with a member of our team, simply click here and we will be in touch