About the Disease
Cystinuria is a rare, inherited disease characterized by the build-up of the amino acid cystine, a building block of most proteins, in the kidneys and bladder. As the kidneys filter blood to create urine, cystine is usually absorbed back into the bloodstream. People with cystinuria cannot properly reabsorb cystine into their bloodstream, so the amino acid accumulates in their urine, resulting in cystine crystals and/or stones in the kidneys or bladder. Cystinuria affects approximately 1 in 10,000 people of all genders, races, ethnicities, and ages in the US.
About our Patient Care
We work with the physician's office and insurance on a patient's behalf, so patients have more time to focus on their treatment and quality of life. We are here to listen, provide counseling on treatment, including side-effect management, and assist with sourcing third-party financial assistance.
As part of treatment, we provide:
Dedicated Care Team
We provide prescribers and patients with a dedicated patient care team for Cystinuria, including a primary pharmacy contact, clinical education, side-effects management, scheduled refill calls, and a direct phone, fax, and email address.
Phone: (800) 764-0147
Fax: (877) 848-6579
Shipping and Coordination of Care
We provide free overnight delivery of medications and necessary medical supplies and manage the coordination of care between prescribers, sites of care, nurses, and patients to ensure dispenses and drug delivery align with the date and location of service.
Financial Assistance Coordination
We successfully identify and assist in enrolling patients into all manufacturer co-pay and foundation support programs to minimize a potential financial burden to patients given the high cost of specialty medications.
24/7 Access to a Pharmacist
We provide prescribers, and patients access to a pharmacist 24/7 to address patients' needs when they need us.
Click on the specialty drug name below to expand and see more information.